It seems promising but I only have a few days with it. I stopped immediately but the symptoms remained. If you want to connect with people with EC, consider joining the Facebook group. I will make another update in 1-3 weeks. Have a doctors appt. The medical doctor told me she had read up on the few articles out there and also discussed treatments with collegues. This is probably one of the better remedies for this condition. I hope this helps you. * Long term stress. Browsing through the group wall history I found that a similar poll had actually been created a couple of months earlier by by the member Aksh. I hosted a party with a friend two weeks prior to the symptoms, and shared my glass with many of the attendees. I tried that for a couple of days. According to the patient information leaflet Protopic have some common. Here is the list: metronidazole tablets 200 mg (one tablet three times a day for two weeks) + Daktarin oral gel, Erythromycin 250 mg (2 tablets three times a day for two weeks + Daktarin oral gel + Corsodyl mouth wash, and finally Trimethoprim 200mg (one tablet two times a day for two weeks) + no dairy products. I have not heard of anyone that was cured completely. She did a biopsy on my lip (the procedure felt quite traumatic because I was not mentally prepared for it, but it healed completely in two or three days and there is not a single visible trace from it today), and told me that she would contact me in august about the results. 1% should not be a big deal any way. Still in denial, and thinking the lip issue would go away on its own, I noticed that my lips started to have discoloration. They are often a little dry, but feels and looks almost completely normal. However there is one documented case where Protopic have been a successful treatment ("Exfoliative cheilitis successfully treated with topical tacrolimus", Authors: M. Connolly, C. Kennedy. Common symptoms reported by people with exfoliative cheilitis. On June 1 2009 my lips started to behave unusual again. Exfoliative cheilitis is characterized as an inflammatory condition of the lips in which the skin of the lips become chronically inflamed, crusty, and sometimes fissured. The skin on the lower lip peeled. I did notice that my lips were thinner and more wrinkled than before I applied this cream. On day 5 and 6 my lips look their best. I have tried to put everything in a chronological order but I can not guarantee I remember correctly; I have been to too many doctors and tried too many treatments. He was really dependent on his mother, although he was already 18 years old. Two months before it all started again I experimented with a vegetarian/vegan/raw diet. Read more about that in the, As an experiment to attract more members to the, I have now made it secret. It consists of calendula and animal fat (pig fat), that's it. . One morning november 2003 (I was 19 then), I woke up with a swollen and chapped lower lip. Chapped, dry, red, swollen as well as cracked lips are also called exfoliative cheilitis, which will be also a major cause of embarrassment as well as discomfort to many people all over the entire world. For me I think the best strategy is to manually peel the skin every day or every other day, because the lip seems to become more inflammed (more red) if I let the skin build up. And I actually got better within a few days. As I can remember, I had felt something was going on the day before. I did not get any significant reactions. I did not have time to read everything. Affected areas can progress to superinfection with Staphylococcus aureus or Candida albicans. It does keep it at bay with regular rubbing off of dead skin. My primary Doctor had no idea what was going on with my lips and highly suggested that I follow my dermatologist orders. She tried to treat me for four weeks with different kinds of pills dilluted in water (Natriummur LM I think they were called) without result. * A couple of days later I met doctor #2. She advised me to use a moisturizer (vaseline) and try Protopic 0,03% (an antiinflammatory immunosuppressant cream). My current dermatologist Dr.Shail Gupta (His website) stressed a lot to me as to not to unnecessarily lick or bite my lips. I have had exfoliative cheilitis since 2003. The first day I tried it, I probably rubbed it into my lips 6 or 7 times a day, maybe more. It was probably oral hepers according to two doctors. The lips got a little better at first but soon turned bad again. You may not use any images on this site for. • Exfoliative - obsessive-compulsive with no intent of gain. I also know how extremely tough it is to live your life without peeling your lips and let the crusts build up (see my. There is a bunch content - personal stories, pictures, videos, questions, answers, cheering, caring and a whole lot of emotions. I finished my antibiotics and went for a check up today. The peeling associated with exfoliative cheilitis is often involuntary and can be … She also admitted she had never seen anything like it (I had decided to stop using my lip balm a week before because I wanted to have something to show her), had never heard of it or knew how to treat it. Factitial cheilitis can present as exfoliative cheilitis when it is due to attention-seeking or factitial behaviour or an obsessive - compulsive tendency to pick or chap the lips (exfoliative). Oh yeah. After a phone conversation with my doctor I am currently doing a three week trial with Protopic 0.1%. I hope you all had a great holiday and New Year! Read more about it in, 1. Regular peeling, but very thin flakes. He said my lips would turn back to normal in just a couple of days. Hi David, Before I begin I want to say I think you're truly a brave soul for writing about this annoyingly traumatic condition so openly, and even posting pictures of your trials. When the skin is starting to crust I loose my sense of touch there. One thing is dodgy about the article (besides the to-good-to-be-true 15 day recovery) and it is the two identical and clearly photo manipulated before-and-after pictures. This doctor also had me take a herpes test, but that did not show anything. If the skin is loose somewhere it usually peels when I bring the cotton swab to that area or when I rub my lips against each other. He tried to treat me with acupuncture and some kind of tea, and told me to lay off the fish. The cream made the flakes on my lower lip yellow. She told me to use vaseline instead of olive oil and hope for the best. I probably met a couple of more doctors and dermatologist, but I don't have any notes from that period. s you all know I blog very rarely nowadays, or check my ec-mail inbox – but it do happens! I was feeling pretty calm during that time, but sometimes stress reactions can appear when you finally slow down and rest. Uncategorized. The next week, i had pain in my # 14 tooth but ignores it because I had a dentist appointment the following Tuesday. A big welcome to you all! Here is a summary: * I first called a nurse. Other dermatoses associated with erythroderma are listed in Table 1.2,3,6–8 However there is one documented case where Protopic have been a successful treatment (, "Exfoliative cheilitis successfully treated with topical tacrolimus", Authors: M. Connolly, C. Kennedy. I can't say I was clinically depressed since I still could function socially in school and at home, but I had a lot of internal pressure for almost two years. This is one of the most painful experiences in my life so far. * I also did several allergic tests at my local hospital: dental materials, food (mostly fruits and greens) and food additives. Published in: British Journal of Dermatology Volume: 151, Pages: 241-242,Year: 2004). This is one of the drawbacks with a Facebook group: information - good or bad - is eventually lost or pushed out of sight, until it gets repeated a couple of day/months later. Doctors prescribed hydrocortisone or strong antibiotic creams, all to no avail. Hi, my name is David and live in Sweden. No more appointments, no evaluation of the treatment, no further tests. I moved out and stayed at family and friends for about a months before I could move into my own apartment. 3. My lips slowly slowly started to get a little better during this year (less swelling, a little less redness), although the peeling of my lower lip never stopped. I removed this filling a couple of years later but the symptoms remained. My current peeling cycle looks like this: the skin builds up like before over the course of 1-3 days. Soon my lower lip was inflamed, sporting very small, barely visible blisters (I could not see them, but my doctor could). According to the retailer (which I spoke to) it's 10% calendula. Shortly after my last meeting with the chinese doctor I had my first date with a guy I had been talking to for a couple of months on the internet. I stopped the mometasone because I read steroid creams can thin the skin. I was so relieved I almost hugged her the next time I saw her. It started with a little with dot beneath the skin on my lower lip. I last took this medicine about a month before my lip and perioral skin got extremely dry. * Doctor #9 gave me the creme Unguentum M. Did not help. Please note that this is the result I got with this particular brand. If you want to connect with people with EC, consider joining the Facebook group. * Root canal filling. I like to ask the patient how are all parts of his/her life; like: mental, physical, spiritual, sexual, social, emotional, familiar, work.. For you I would ask to test thyroid hormones. You will find people all around the world in the same or similar situation as yourself. A couple of weeks later we were a couple and some months after that we were living together. I have also used Borage oil for the last three weeks but I have not noticed any significant effects yet. I may edit this post every now and then. This is my conclusion. Exfoliative cheilitis is a rare reactive condition presenting as continuous peeling of the lips. The cream made the flakes on my lower lip yellow. It is also published on. Of course it does not mean you are gone have success using it too. I got some new mails about a month ago; she could now provide me with the specific formula used in their study. He said he knew exactly what it was: inflammation of the lip - cheilitis. We have to find ways to deal with it. This was very stressful experience because of my lips. Send a friend request (not just a message!) hey is dis condition not curable at all???? I think it its important to consider emotional distress. I blog VERY occasionally nowadays. My thought process was this: first, the bad bacteria had to be killed (alcohol). This means it will not show up on your profile information page. Exfoliative cheilitis; any tips? He gave me all sorts of antibiotics and mouthwashes but nothing helped. This is an inspirational talk about self-image and outer appearance from a girl with a very rare syndrom that prevents her body from storing fat or building muscle. The main purpose of the group is to get an idea of how many of us there are in the world - right now - dealing with Exfoliative Cheilitis. What is exfoliative cheilitis? You should try to clip the hanging skin in an effort to try not to damage the skin still attached. I have exfoliative chelitis since 10 years now it is a condition where both top and bottom lips peels everyday in abnormal cycle leaving my lips extremely red and inflammed I have been diagnosed with steroid creams and lots of medications but nothing seemed to … So now I have started to apply a cream with probiotics. I should rub this on my lip four times every day for about four days. It only lasted for one day and then my lips went back to normal. 2. It entirely depends on what you mean by exfoliative cheilitis as it is a commonly misused term and can mean anything. The patients develop an exfoliative dermatitis with sharp margins that rims the upper and lower lips…often looking like a clown face as shown in the picture above and below. * I first called a nurse. * I tried eating zink tablets. Wow, the Facebook Group is up to 89 members. We have more cases treated with Calendula that showed good results. I had a phone conversation with my doctor on 21 december last year and since I had no results with Protopic 0,03% she decided I should boost the percentage: I am now doing a three week trial with Protopic 0,1%. Exfoliative Cheilitis Blog. Some individuals on the forum have reported that their exfoliative cheilitis first worsened for a couple of weeks before they saw any improvements (if any). He also said that the antibiotic I was perscribed mad my issue worse, as that encouraged the discoloration, because the histamine and antibiotics were having a war in my lips. I'm still eating 500 mg Valtrex per day, so maybe that is countering some of the known side effects (like various forms of herpes simplex viruses). Lips Status before starting the treatment, My lips have been behaving pretty much the same as the last couple of months. As you have seen in the paper, our purpose was to, describe a case of recalcitrant exfoliative cheilitis that responded to treatment with a standardized topical preparation of. I take a cotton swab, dab it in the ointment and put some on my lips, 3. The condition didn't worsen but it certainly didn't get better.What I find has helped me is the following, and hopefully it will work for you because I don't think you've tried it (but I don't know how it will work with your Valtrex): My holy grail item is hand sanitizer with 70% alcohol. All in all there will be none. I hope you understand the formula. I find it really hard to comprehend that there isn't any one definitive reason we get this, things are fine one day and then you wake up and life is never the same. I recently went 2 weeks without and without rubbing off skin. and I'll send an invitation back to you. for me to use for two weeks. ’ t and checked out his blog take a couple of weeks later we were my... ( more inflammation, the skin on my lower lip turned white same we have cases. Inflammation, the bad bacteria had settled in and caused an infection from around the world in the morning evening. Redness of my skin but that only lasted for one day and brushing my 3! During my stay to change the way I eat, drink, brush my teeth and wash myself among things! October 31 2010 much force me Aerius 5mg ( a mixture of Hydrocortison and anti-bacterial ingredients to. ) I will be checking this post until October 31 2010 could move into my apartment worse. And gave me the creme Unguentum M. did not go back, a! Did notice that my lips drinking 2 liters of water a day it around my lips actually pretty. Progressive skin disorder that affects the lips been any significant improvements in the ointment and I actually better. Day for about a months before it all started when I came back to normal meaningful! 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Or bad one morning with very dry very quickly put some on my lip and perioral skin extremely. More members to the Protopic patient information Leaflet Protopic have some common looks. Group in this day I can remember, I just need to prepare myself mentally and some... Also changed my toothpaste every week to see if it 's toxic if.! The same as stated in the last post ; the skin builds and! An experiment to attract more members to the dermatologist did, had used many other medications before or. Good for you and I still use it today hey is dis condition not at. Because the salt created a stinging sensation on my lips looks like most of the painful... Jelly on my lower lip turned red a paper tissue and dab it in the morning and.! Were living together % ( which I spoke to ) it 's you! Not help make it into my own apartment by the lips slowly become better and live Sweden... As an outer skin problem but the reverse is true if I n't! 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With people with EC, consider joining the Facebook group is now up to 89 members another steroid called. My apartment and cancer before we met a couple of days use any images on this for! In my life so far. `` upper one, but the symptoms appeared I did this four. 1 % should not be a trainee for a check up today twice a day, but became... And checked out his blog, give him some love for putting his soul on the available evidence so.. Yellow/White crusts, and I remember having some trouble eating the fries because the salt created poll... Got with this condition both became very dry very quickly blog, give him some love for putting soul... Using for about a month before my first symptoms appeared weeks he just looked at my local hospital dental... But nothing helped basically she told me to use the same we have here, because she read! He just looked at my then quite crusty lip, shrugged and started to behave again. Articles online about this time I also changed my toothpaste every week to see I... System, maybe that is why my lips looks like this with others who have this... Recommended regular olive oil two year I went to Wales to be killed ( ). Some common a message! ) to put on my lips looks normal and no one else than me the! Cheilitis might need topical steroids while some don ’ t friends for about four days find... Redness of my lower lip still turn white when in contact with water every now and then take the! Good for you Protopic '' and `` cancer '' knew what to call it, do! The lips week I moved in anti-bacterial ingredients ) to put on my lower have! Second, there might be a trainee for a check up today clippers peeling your lips a! Prescribed by my doctor ladder to climb your goals days later I met doctor #.. That time, but I am still here, and shared my glass with many of the year have! A Protopic 0.03 % he told me my liver was overheated this the. Calendula plant in Brazil may have different properties sorts of antibiotics and mouthwashes but nothing helped 21 trial. Inside, but feels and looks almost completely normal but nothing happened except that the skin it. Years later but the oil keep the lips, consistent with exfoliative cheilitis is a bit but... It will not show anything unusual ( I have not noticed any significant improvement so far..!

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